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Project Information

Project Information


Measuring Sex, Gender Identity, and Sexual Orientation for the National Institutes of Health


Project Scope:

An ad hoc panel of the National Academies of Sciences, Engineering, and Medicine will review current measures and the methodological issues related to measuring sex as a non-binary construct, gender identity, and sexual orientation in surveys and research studies, in administrative settings (such as grant and job applications), and in clinical settings (such as doctors’ offices or clinical trials). As part of its information-gathering activities, the panel will hold a virtual, 1.5-day public workshop to get input from researchers in sexual and gender minority health and well-being, academic and government researchers doing work on measuring these concepts, members of sexual and gender diverse populations, and policy makers and other users of these data. The panel will produce a consensus report with conclusions and recommendations on 1) guiding principles for collecting data on sex, gender identity, and sexual orientation, and 2) recommended measures for these constructs in different settings.

Status: Current

PIN: DBASSE-CNSTAT-20-13

Project Duration (months): 18 month(s)

RSO: Harris-Kojetin, Brian

Board(s)/Committee(s):

Committee on National Statistics

Topic(s):

Surveys and Statistics


Parent Project(s): N/A


Child Project(s): N/A



Geographic Focus:

Committee Membership

Committee Post Date: 04/26/2021

Nancy Bates - (Co-Chair)
Nancy Bates is an international expert in the measurement of SOGI. She is currently working as a consultant with Stanford University on an NIH grant on SOGI measurement. Bates recently retired from the Census Bureau where she served as the senior methodologist for survey research. She oversaw and contributed to the research that formulated inclusive relationship questions resulting in the reduction of measurement error for same sex couples in the 2020 decennial census. Bates was the co-chair of the Office of Management and Budget and the Federal Committee on Statistical Methodology SOGI research group from 2015 to 2019. She recently co-edited a Journal of Official Statistics special issue on measuring LGBT populations (2019). She served as a planning committee member for the Institute of Medicine, national academy workshop on SOGI data collection in electronic health records (2012). Bates is also an elected fellow of the American Statistical Association. She is an accomplished researcher with over 30 peer reviewed papers. She earned her MA in applied sociology from the University of Oklahoma.
Marshall H. Chin - (Co-Chair)
Marshall H. Chin, M.D., M.P.H., the Richard Parrillo Family Professor of Healthcare Ethics in the Department of Medicine at the University of Chicago, is a practicing general internist and health services researcher who has dedicated his career to reducing health disparities through interventions at individual, organizational, community, and policy levels. Chin has elucidated practical approaches to improving care of diverse individual patients and addressing systemic, structural drivers of disparities in the health care system. He and his team created the Roadmap to Reduce Disparities cited in NAM and CMS reports. Chin is the principal investigator of the AHRQ-funded Your Voice! Your Health! project that improves shared decision making among clinicians and LGBTQ people of color. He was the Report Monitor for the NAM Committee on Population report on Understanding the Status and Well-Being of Sexual and Gender Diverse Populations and the Review Coordinator for the NAM Report on Implementing High-Quality Primary Care. He was on the NAM Committee on the Future of Nursing 2020-2030 (2019-2021) and the NAM Committee on Future Directions for the National Healthcare Quality and Disparities Reports (2009-2010). Chin was elected to the National Academy of Medicine in 2017. Chin received both his Bachelors and his MPH from Harvard, and his MD from the University of California at San Francisco School of Medicine, and he completed residency and fellowship training in general internal medicine at Brigham and Women’s Hospital, Harvard Medical School.
Kellan Baker
Kellan Baker (he/him) is the Centennial Scholar and a Robert Wood Johnson Health Policy Research Scholar in the Department of Health Policy and Management at the Johns Hopkins Bloomberg School of Public Health, where his research focuses on economics, policy, and methodology issues in transgender health. He is a health policy expert and health services researcher with extensive background in regulatory policy, public health, health equity, and federal statistics. Previously Kellan was a Senior Fellow at the Center for American Progress in Washington, DC, where he worked on health equity and data collection policy at the federal and state levels and was a founding Steering Committee Member of Out2Enroll, a nationwide campaign in partnership with the White House and the U.S. Department of Health and Human Services to connect low-income LGBT populations with coverage under the Affordable Care Act. Kellan has consulted on LGBT health and health equity issues with the Joint Commission, the Open Society Foundations, and Kaiser Permanente, among others, and he currently serves as a consultant for the National Academy of Sciences on a consensus study report assessing the well-being of LGBTQI+ populations. He has published widely on data collection, health law and policy, and LGBT population health and was one of the authors of the 2014 GenIUSS Group report on gender identity data collection. Kellan is the board chair of the Equality Federation and also serves on numerous scientific and community engagement bodies. He holds a PhD in health policy and management with a focus on health services research and health economics from the Johns Hopkins School of Public Health, a Master of Public Health from the George Washington University, a Master of Arts in International Development from the Elliott School of International Affairs at the George Washington University, and a BA with high honors in astrophysics and Russian from Swarthmore College.
Jose A. Bauermeister
José Arturo Bauermeister, MPH, PhD, is the Albert M. Greenfield Professor of Human Relations at the University of Pennsylvania. He is chair of the Department of Family and Community Health at the Penn School of Nursing, Director of the Penn Program on Sexuality, Technology & Action Research, and Professor of Psychiatry at the Perelman School of Medicine. Dr. Bauermeister is also Chair of the National Institutes of Health's (NIH) Population and Public Health Approaches to HIV/AIDS Study Section, and a standing member of the NIH's Council of Councils' Sexual and Gender Minority Research Working Group. Dr. Bauermeister is committed to addressing health inequities among LGBT youth of color through his scholarship. Dr. Bauermeister served as Associate Editor of the American Psychological Association’s inaugural book on human sexuality (Handbook of Sexuality and Psychology; 2 volume set; Drs. Lisa Diamond and Deb Tolman, Eds.) and SAGE’s Handbook of LGBT Lives in Context (Dr. Abbie Goldberg, Ed). He recently co-edited the first LGBT specific book focused on health research (LGBTQ Health Research: Theory, Methods & Practice), published by the Johns Hopkins University Press. Dr. Bauermeister is an Aspen Institute Health Innovators Fellow and a member of the Aspen Global Leadership Network. He also serves on the Editorial Board of several top-tier sexuality journals, including the Archives of Sexual Behavior and the Annals of LGBTQ Population Health, among others. Dr. Bauermeister has also served as a subject matter expert for the National Academies of Science, Engineering and Medicine on prior commissioned reports. He received his bachelor’s degree in psychology from the University of Puerto Rico and his master’s and doctorate in public health from the University of Michigan.
D'Lane Compton
D’Lane R. Compton is a Full Professor of Sociology at the University of New Orleans. Their two major research interests are social psychology and the demography of sexual orientation, using both perspectives to examine sexual, gender, and family inequalities. Specifically, their research adds to our knowledge about how categorization or labeling processes yield different outcomes in treatment and resources. This work has culminated in a number of peer-reviewed articles, book chapters, education essays, and two co-authored books including Same-sex Partners: The Social Demography of Sexual Orientation (SUNY Press, 2009) with Amanda K. Baumle and Dudley L. Poston and most recently, Legalizing LGBT Families: How the Law Shapes Parenthood (NYU Press, 2015) with Amanda K. Baumle. This latter emphasizes the variability in the laws for LGBT families across the United States and draws upon this variation to highlight how individual characteristics, social networks, other legal actors, and contextual characteristics operate together to shape legal consciousness and makes an important contribution toward policy on LGBT families. Compton is interested in research design and methodological issues related to substantive concerns, in particular how methods of measurements can affect inferences about and the study of underrepresented or “hidden” populations. Dr. Compton received their BS and Ph.D. in sociology from Texas A&M and their MA in sociology from the University of Missouri- St. Louis.
Katharine B. Dalke
Katharine B. Dalke, MD MBE, is an assistant professor in the departments of Psychiatry and Behavioral Health and Humanities at the Penn State College of Medicine. Her clinical and scholarly work focuses primarily on the mental health of people who are LGBTQI or who have differences of sex development (DSD). Dr. Dalke also serves as the director of the Office for Culturally Responsive Health Care Education, which is responsible for innovating and integrating cultural competency and humility training across the College of Medicine’s educational programs. In this role, she focuses on how formal health sciences curricula can promote culturally responsive learning environments and clinical care. Her involvement with LGBTQI and DSD research and education has been recognized with community advocacy awards and appointment to the Pennsylvania Governor’s Commission on LGBTQ Affairs. She currently serves on Working Group to the NIH Sexual and Gender Minority Research Office and the Intersex Working Group for the World Professional Association for Transgender Health’s Standards of Care revision. Dr. Dalke was a consensus committee member on the National Academies’ recently published report on Understanding the Well-being of LGBTQI+ Populations. She earned her MD and a Masters in Bioethics from the University of Pennsylvania and completed psychiatry residency training at the Hospital of the University of Pennsylvania.
Aliya Saperstein
Aliya Saperstein is an Associate Professor of Sociology and the Benjamin Scott Crocker Professor in Human Biology at Stanford University. Her research focuses on the conceptualization and measurement of race/ethnicity and sex/gender in surveys, and the implications of these methodological decisions for studies of stratification and health disparities. Saperstein co-authored a 2015 article, “New Categories Are Not Enough: Rethinking the Measurement of Sex and Gender in Social Surveys” and her subsequent work on alternative survey measures of sex and gender informed the addition of new self-identification items in the U.S. General Social Survey in 2018. She was honored with the Early Achievement Award by the Population Association of America in 2016. Her research in this area has been supported by the American Sociological Association Fund for the Advancement of the Discipline, the Clayman Institute for Gender Research, and the Russell Sage Foundation. She received a Ph.D. in Sociology and Demography from the University of California-Berkeley.
Karina L. Walters
Karina L. Walters, MSW, Ph.D, is an enrolled citizen of the Choctaw Nation of Oklahoma, is a Katherine Hall Chambers University Professor at the University of Washington School of Social Work, an adjunct Professor in the Department of Global Health, School of Public Health, and the founding Director of the Indigenous Wellness Research Institute (IWRI) at the University of Washington. Dr. Walters has over 25 years of experience in social epidemiological research on the environmental, historical, social, and cultural determinants of define AIAN health and health equity as well as expertise in Indigenous methodologies and in designing culturally derived chronic disease prevention research. She has written landmark papers in the field of traumatic stress and health, developed culturally specific measures of historical trauma and microaggression distress, and developed the Indigenist Stress-Coping model (cited in over 450 studies). Methodologically, she has expertise in decolonizing methodologies, particularly with respect to developing culturally grounded measures as well as designing community-based, culturally derived interventions. Dr. Walters has served as Principal Investigator or Co-Investigator on 33 NIH studies (22 as PI) from diverse NIH institutes. Recognizing her scientific, practice, and research talents, she is only one of two American Indians (and the only Native woman) ever invited to deliver the prestigious Director’s lecture to the Wednesday Afternoon Lecture Series (WALS) at the National Institute of Health and is the first American Indian Fellow inductee into the American Academy of Social Welfare and Social Work (AASWSW)- where she co-chaired the Health Equity Committee. Dr. Walters earned her BA is sociology, and her MSW and PhD in social welfare all form the University of California, Los Angeles.
Bianca D. Wilson
Bianca D.M. Wilson, Ph.D., is the Rabbi Zacky Senior Scholar of Public Policy at the Williams Institute. Her research focuses primarily on system-involved LGBTQ youth, LGBT poverty, and sexual health among queer women. Across the substantive areas of research, she has completed studies and reports on the measurement of sexual orientation, gender identity, and gender expression among youth and adults. In addition to multiple peer-reviewed and institution-published reports, she co-edited a special issue of the Journal of Lesbian Studies that featured a multidisciplinary collection of work on health and other topics from the perspectives of Black Lesbians in the U.S., Caribbean, and South Africa. She earned a doctorate in Psychology from the Community and Prevention Research program at the University of Illinois at Chicago (UIC) with a minor in Statistics, Methods, and Measurement, and received postdoctoral training at the UCSF Institute for Health Policy Studies and the UCSF Lesbian Health and Research Center through an Agency for Health Research and Quality (AHRQ) postdoctoral fellowship.

Events


Event Type :  
-

Description :   

This meeting was closed to the public. The panel discussed the reponse to reviewer comments.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Eric Grimes
Contact Email:  ergrimes@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Marsh Chin
Nancy Bates
Katie Dalke
Kellan Baker
Jose Bauermeister
Bianca Wilson
Karina Walters
Aliya Saperstein

The following topics were discussed in the closed sessions:

Response to Reviewer Comments

The following materials (written documents) were made available to the committee in the closed sessions:

Reviewer Comments

Date of posting of Closed Session Summary:
January 11, 2022
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This meeting was closed to the public. The panel discussed the reponse to reviewer comments.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Eric Grimes
Contact Email:  ergrimes@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Marsh Chin
Nancy Bates
Katie Dalke
Kellan Baker
Jose Bauermeister
Bianca Wilson
Karina Walters
Aliya Saperstein

The following topics were discussed in the closed sessions:

Response to Reviewer Comments

The following materials (written documents) were made available to the committee in the closed sessions:

Reviewer Comments

Date of posting of Closed Session Summary:
January 11, 2022
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This meeting is closed to the public. The panel will discuss the National Academies review process and further discuss the report recommendations.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Eric Grimes
Contact Email:  ergrimes@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Nancy Bates
Jose Bauermeister
Bianca Wilson
Karina Walters
D'Lane Compton
Aliya Saperstein
Katie Dalke

The following topics were discussed in the closed sessions:

National Academies Report Review Process
Report Draft

The following materials (written documents) were made available to the committee in the closed sessions:

Report Draft

Date of posting of Closed Session Summary:
November 01, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This meeting was closed to the public.The panel discussed the report draft and recommendations.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Eric Grimes
Contact Email:  ergrimes@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Nancy Bates
Marshall Chin
Katie Dalke
Kellan Baker
Bianca Wilson
Karina Walters
Jose Bauermeister
Aliya Saperstein

The following topics were discussed in the closed sessions:

Report
Recommendations

The following materials (written documents) were made available to the committee in the closed sessions:

Draft Report

Date of posting of Closed Session Summary:
November 01, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This is a closed panel meeting. The panel discussed the report contents and recommendations.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Eric Grimes
Contact Email:  ergrimes@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Marshall Chin
Nancy Bates
Kellan Baker
Jose Bauermeister
Katie Dalke
Aliya Saperstein
Bianca Wilson
Karina Walters

The following topics were discussed in the closed sessions:

Report Contents
Recommendations

The following materials (written documents) were made available to the committee in the closed sessions:

Report Outline

Date of posting of Closed Session Summary:
September 21, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This meeting is closed to the public. The panel will be discussing the report details and summary.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Eric Grimes
Contact Email:  ergrimes@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Nancy Bates (Co-Chair)
Marshall Chin (Co-Chair)
Kellan Baker
Bianca Wilson
Aliya Saperstein
Katie Dalke
Karina Walters
Jose Bauermeister

The following topics were discussed in the closed sessions:

Report details and summary

The following materials (written documents) were made available to the committee in the closed sessions:

Report Outline

Date of posting of Closed Session Summary:
September 08, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This is a closed meeting of the Panel on Measuring Sex, Gender Identity, and Sexual Orientation for the National Institutes of Health. They will discuss the report outline and further meeting schedules.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  -
Contact Email:  -
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Nancy Bates
Marshall Chin
Kellan Baker
Jose Bauermeister
Katie Dalke
Karina Walters
D'Lane Compton
Bianca Wilson
Aliya Saperstein

The following topics were discussed in the closed sessions:

Report Chapters

The following materials (written documents) were made available to the committee in the closed sessions:

Agenda

Date of posting of Closed Session Summary:
August 24, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This meeting is closed to the public. 


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  -
Contact Email:  -
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Nancy Bates
Marshall Chin
Kellan Baker
Bianca Wilson
Aliya Saperstein
D'Lane Compton
Karina Walters
Katie Dalke
Jose Bauermeister

The following topics were discussed in the closed sessions:

Chapter Outlines
Chapter Contents

The following materials (written documents) were made available to the committee in the closed sessions:

Agenda
Report Outline

Date of posting of Closed Session Summary:
July 29, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This will be the third open meeting of the Committee on Measuring Sex, Gender Identity, and Sexual Orientation for the National Institutes of Health. There will be a presentation from outside experts on the subjects of sex and gender in populations with differences in sex development, legal identification and civil rights, and sex, gender identity, and sexual orientation in health care. After each subject session, the panel will ask questions of the presenter.



Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  -
Contact Email:  -
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
No

Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This will be the second open/closed meeting of the Committee on Measuring Sex, Gender Identity, and Sexual Orientation for the National Institutes of Health. This meeting will contain both open and closed sessions. The panel will discuss the report outline and potential presenters for future meetings. There will be a presentation from an outside expert after which the panel will ask questions of the presenter.



Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  -
Contact Email:  -
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Some sessions are open and some sessions are closed

Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

This meeting will be the first public meeting of the panel. The open session of this meeting will include a presentation from the National Institutes of Health and a discussion with them on their interests and statement of task.



Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  -
Contact Email:  -
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Some sessions are open and some sessions are closed

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Nancy Bates
Marshall Chin
Kellan Baker
José Bauermeister
D'Lane Compton
Katherine Dalke
Aliya Saperstein
Karina Walters
Bianca Wilson

The following topics were discussed in the closed sessions:

Panel bias and conflict discussion, clarification of statement of task, discussion of next steps in the development of the project

The following materials (written documents) were made available to the committee in the closed sessions:

Agenda

Date of posting of Closed Session Summary:
May 24, 2021
Publication(s) resulting from the event:

-

Publications

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