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Project Information

Project Information


Assessment of NIH Research on Autoimmune Diseases


Project Scope:

The National Academies of Sciences, Engineering, and Medicine will convene an ad hoc committee to conduct a congressionally mandated study of NIH research on autoimmune diseases. The study will:

  • Provide a general overview (with particular focus on NIH research efforts) of epidemiologic trends in autoimmune diseases.
  • For common autoimmune diseases (including those that are overrepresented in women), evaluate the NIH research portfolio with particular attention to issues such as risk factors; diagnostic tools; barriers to diagnoses; treatments; and prospects for cures.
  • Review NIH’s research activities related to specific autoimmune diseases, the occurrence of multiple autoimmune diseases in individuals, and the interplay of autoimmune diseases and comorbidities. 
  • Assess trends in the focus of NIH research and address whether the trends are reflective of the changes in epidemiology as compared to other factors such as availability of research tools and technologies, and emerging biomedical knowledge and concepts.
  • Identify barriers to NIH-sponsored research and research gaps for autoimmune diseases.
  • Identify promising areas for future NIH-sponsored research for autoimmune diseases that would benefit the greatest need.
  • Evaluate Institute and Center structure in support of NIH autoimmune disease research to identify where needs are met and where coordination could be enhanced.
  • Produce and publish a final consensus committee report summarizing the committee’s findings, conclusions, and recommendations. The report must address NIH accomplishments, challenges that NIH faces, as well as possible solutions to the challenges.

Status: Current

PIN: HMD-BPH-20-11

Project Duration (months): 18 month(s)

RSO: Martinez, Rose Marie

Topic(s):

Health and Medicine


Parent Project(s): N/A


Child Project(s): N/A



Geographic Focus:

Committee Membership

Committee Post Date: 10/26/2020

Bernard M. Rosof - (Chair)
Bernard M. Rosof, M.D., is a professor in the Department of Medicine at the Zucker School of Medicine at Hofstra/Northwell and chief executive officer of Quality in HealthCare Advisory Group, LLC. A practicing internist and gastroenterologist for nearly 30 years, he is at the forefront of national initiatives in the areas of quality and performance improvement. He served on the Board of Directors of the National Quality Forum (NQF), and as co-chair of the National Priorities Partnership (NPP) convened by the NQF to set national priorities and goals to transform America’s healthcare. Rosof is a past chair of the Physician Consortium for Performance Improvement convened by the American Medical Association to lead efforts in developing, testing, and implementing evidence-based performance measures for use at the point of care. He is a Master of the American College of Physicians and Chair Emeritus of the Board of Regents of the American College of Physicians. He also served as a member of the Clinical Performance Measurement Committee of the National Committee for Quality Assurance and Chair of the Physician Advisory Committee for UnitedHealth Group. He has chaired committees for the New York State Department of Health and the National Academy of Medicine (previously Institute of Medicine). Dr. Rosof is on the editorial board of the American Journal of Medical Quality and The Journal of Delivery Science and Innovation. He received his M.D. from New York University and completed a fellowship in gastroenterology at Yale School of Medicine.
Glinda S. Cooper
Glinda S. Cooper, Ph.D., is an internationally recognized expert in environmental epidemiology and women’s health. During her tenure in the Epidemiology Branch of the National Institute of Environmental Health Sciences (NIEHS) from 1993 to 2006, she developed and directed a multidisciplinary research program focusing on occupational and hormonal influences on lupus and other autoimmune diseases. This research program helped establish our understanding of the effects of occupational and environmental exposures, particularly silica dust, on autoimmune diseases. Dr. Cooper also led efforts to create and implement an evidence-based, systematic review framework for the evaluation of chemical hazards at the National Center for Environmental Assessment in the U.S. Environmental Protection Agency, and conducted the evaluation of immune-related and reproductive health effects of solvents, pesticides, and other environmental exposures. Since joining the Innocence Project in 2016, Dr. Cooper has focused on efforts to strengthen the scientific basis of forensic disciplines and on evidence-based reforms aimed at reducing wrongful prosecutions and convictions. Dr. Cooper received a Ph.D. from the Department of Epidemiology of the University of North Carolina at Chapel Hill and a Sc.M. in Health Policy and Management from the Harvard School of Public Health. She has published more than 100 peer-reviewed papers based on her research and has been an invited speaker and workshop organizer at numerous international and national meetings.
Deidra C. Crews
Deidra C. Crews, M.D., Sc.M., is an associate professor of medicine in the Division of Nephrology at the Johns Hopkins University School of Medicine. She holds appointments with the School of Nursing; the Welch Center for Prevention, Epidemiology and Clinical Research; the Center on Aging and Health; and the Center for Health Equity, where she is associate director for Research Development. Her research focuses on addressing disparities in the care and outcomes of kidney disease and hypertension. An elected member of the American Society for Clinical Investigation, Dr. Crews has received numerous awards for her research contributions, including the 2018 Johns Hopkins University President’s Frontier Award—a $250,000 award granted to a single faculty scholar on the cusp of transforming their field. She is a National Academy of Medicine (NAM) Emerging Leader Scholar and was the inaugural Gilbert S. Omenn Anniversary Fellow of the NAM. In 2019, Dr. Crews received the W. Lester Henry Award for Diversity and Access to Care from the American College of Physicians and the Distinguished Leader Award from the American Society of Nephrology.
William R. Duncan
William R. Duncan, Ph.D., is Vice Provost for Research at East Tennessee State University. Previously he was Chief Operating Officer and Chief Scientific Officer of the Baylor Research Institute. At the National Institute of Allergy and Infectious Diseases, he served as Associate Director of the Therapeutics Research Program in the Division of AIDS (DAIDS) beginning in 1993, and then served as Deputy Director of the Division of Allergy, Immunology and Transplantation (DAIT) from 2002 to 2004. He has extensive experience developing and administering national and international research programs, promoting the development of therapeutic agents and diagnostic tools for the treatment of cancer, infectious diseases and autoimmune diseases. He received his Ph.D. in immunology from the University of Texas Health Science Center at Dallas.
DeLisa Fairweather
DeLisa Fairweather, Ph.D., is associate professor of medicine and director of translational research for the Department of Cardiovascular Diseases at Mayo Clinic's Florida campus. Her laboratory conducts translational research focused on finding individualized therapies and improved diagnosis for chronic inflammatory diseases. In addition to an interest in myocarditis, dilated cardiomyopathy, and heart failure, Dr. Fairweather specializes in how sex differences in inflammation caused by environmental exposures lead to chronic inflammatory disease, including rheumatic autoimmune diseases, cardiovascular disease, cancer, and lung disease. She has served on the External Advisory Committee of the Center for the Study of Sex Differences in Health, Aging and Disease at Georgetown University since 2015. She currently has NIH funding for three studies on myocarditis. She has been a standing member of the Atherosclerosis and Inflammation of the Cardiovascular System Study Section at NIH since 2014, and she serves on the Medical Advisory Board for the Myocarditis Foundation. After doing a predoctoral fellowship and earning a Ph.D. in microbiology and immunology at the University of Western Australia, she completed a postdoctoral fellowship in immunology in the laboratory of Noel R. Rose, M.D., Ph.D., at Johns Hopkins University School of Medicine. She is a Co-Investigator and Leader of the Mayo-led FDA-funded Expanded Access Program (EAP) providing convalescent plasma to patients with COVID-19.
Sonia Friedman
Sonia Friedman, M.D., is an associate professor of medicine at Harvard Medical School and director of women’s health at the Crohn’s and Colitis Center at Brigham and Women’s Hospital. She is an expert on inflammatory bowel disease (IBD), and her research interests include IBD and fertility and pregnancy. She is the co-author of the chapter on IBD in Harrison’s Principles of Internal Medicine. Dr. Friedman received her M.D. from Yale School of Medicine, was a medical resident at the Hospital of the University of Pennsylvania, and completed a fellowship in gastroenterology at Mount Sinai Medical Center in New York, where she developed her interest in IBD.
Lisa I. Iezzoni
Lisa I. Iezzoni, M.D., M.Sc., is a professor of medicine at Harvard Medical School based at the Health Policy Research Center at the Mongan Institute at Massachusetts General Hospital. She has conducted health services research for more than 35 years, focusing on two primary areas: risk adjustment methods for predicting cost and clinical outcomes of care, and health care experiences and outcomes of persons with disabilities. After 16 years as co-director of research in the Division of General Medicine and Primary Care at Boston’s Beth Israel Deaconess Medical Center, Dr. Iezzoni joined the then Institute for Health Policy as associate director in 2006, and served as director of the newly named Health Policy Research Center from 2009 to 2018. She served from 2008 to 2010 on the U.S. Secretary's Advisory Committee on Health Promotion and Disease Prevention Objectives for 2020. She has led health policy-related studies for the Agency for Healthcare Research and Quality, the Health Care Financing Administration, the NIH, and private foundations. She currently receives NIH funding for two projects focused on persons with disabilities. She edited Risk Adjustment for Measuring Health Care Outcomes, now in its fourth edition. She wrote When Walking Fails and was co-author of More Than Ramps: A Guide to Improving Health Care Quality and Access for People with Disabilities. She is a member of the National Academy of Medicine. Dr. Iezzoni received her M.Sc. from the Harvard School of Public Health's Health Policy and Management program and her M.D. from Harvard Medical School.
Andrea M. Knight
Andrea M. Knight, M.D., M.S.C.E., is an assistant professor of pediatrics at the University of Toronto, and a staff physician in the Division of Rheumatology at the Hospital for Sick Children in Toronto, where she is an associate scientist in the Neurosciences and Mental Health Program of the Research Institute. She is also an adjunct assistant professor of pediatrics in the associated faculty of the Perelman School of Medicine at the University of Pennsylvania, and a faculty scholar at PolicyLab at Children’s Hospital of Philadelphia (CHOP). Dr. Knight’s research focuses on mental health in youth with rheumatologic conditions, with an emphasis on neuropsychiatric function in childhood-onset systemic lupus erythematosus (cSLE). She has investigated the burden of psychiatric morbidity and strategies to improve comprehensive care for youth with SLE and other rheumatologic disease. She is also investigating the impact of cSLE on brain structure, function, and development. Dr. Knight received her M.D. from the College of Physicians and Surgeons of Columbia University. She completed a residency in pediatrics and a fellowship in pediatric rheumatology at CHOP. She earned her M.S.C.E. from the University of Pennsylvania.
Scott M. Lieberman
Scott M. Lieberman, M.D., Ph.D., is associate professor of pediatrics in the Division of Rheumatology, Allergy and Immunology at Carver College of Medicine, University of Iowa. His research goals are to understand the earliest immunologic events in the development of organ-specific autoimmunity to identify potential targets for better diagnosis and treatment of these diseases. The main focus of his laboratory is the role of T cells in the initiation of lacrimal and salivary gland autoimmunity characteristic of Sjögren’s disease. He currently has NIH funding for a study on the role of cytokines in T-cell dysregulation in lacrimal gland autoimmunity. He also cares for children with rheumatic diseases and participates in efforts to better understand Sjögren’s in children through an international collaborative workgroup. He has co-authored several book chapters on rheumatic disease manifestations in children including, most recently, the chapter on Sjögren’s in children in Sjögren’s Syndrome: A Clinical Handbook (Elsevier). He received the Arthritis Foundation’s Stewart J. McCracken Award for excellence in the field of arthritis research, and he was awarded an American Association of Immunologists Careers in Immunology Fellowship. He earned his Ph.D. in immunology and his M.D. at the Albert Einstein College of Medicine. He performed a residency in pediatrics (ABP Special Alternative Pathway) at the Children’s Hospital of Philadelphia, where he also completed a fellowship in pediatric rheumatology.
Michael D. Lockshin
Michael D. Lockshin, M.D., is the director of the Barbara Volcker Center for Women and Rheumatic Disease at Hospital for Special Surgery (HSS) in New York and professor of medicine and obstetrics-gynecology at Weill Cornell Medicine. As a medical student he cared for a seriously ill pregnant woman with systemic lupus erythematosus (SLE), and he has focused his career on patients with this disease. He was one of the first physicians to associate the newly discovered antiphospholipid antibody with pregnancy complications. Dr. Lockshin has had a long-standing interest in the overlap of autoimmune diseases such as SLE, multiple sclerosis, and thyroid disease, and in sex differences in disease incidence. He is also working to create consensus to systematize approaches for confronting diagnostic uncertainty for patients with conditions that do not fall within clear diagnostic criteria. A member of the faculty of Weill Cornell Medical College and a staff rheumatologist at HSS and New York Hospital (now Weill Cornell Medicine) from 1970 to 1989, he became Extramural director, then acting director, of the National Institute of Arthritis and Musculoskeletal and Skin Diseases in 1989. He returned to HSS in 1997 to head the Barbara Volcker Center. He also served as an Epidemic Intelligence Service Officer in the U.S. Public Health Service of the Communicable Disease Center (now Centers for Disease Control), where he focused on environmental causes of rheumatic illnesses. Dr. Lockshin has served as editor-in-chief of Arthritis and Rheumatism, rheumatology's premier journal. He has served on several National Academy of Medicine committees. Dr. Lockshin received his M.D. from Harvard Medical School, and he completed his medical residency at Second (Cornell) Medical Service at Bellevue Hospital and Memorial Sloan Kettering Cancer Center and his rheumatology fellowship at Columbia-Presbyterian Hospital (now New York-Presbyterian/Columbia University Irving Medical Center).
Jill M. Norris
Jill M. Norris, Ph.D., M.P.H., is professor and chair of the Department of Epidemiology in the Colorado School of Public Health at the University of Colorado Denver. Dr. Norris’ research has focused on the relationship between diet and other environmental exposures and the development of autoimmune diseases—including type 1 diabetes, celiac disease, rheumatoid arthritis, and lupus—using longitudinal cohort studies in which genetically at-risk individuals are followed for the appearance of autoantibodies and subsequent progression to clinical disease. She has taken part in multiple NIH-funded studies, and she is currently involved in a project on type 1 diabetes. She was a contributor to Diabetes in America (3rd ed., 2016–2018), published by the National Institute of Diabetes and Digestive and Kidney Diseases. She received her M.P.H. and Ph.D. from the University of Pittsburgh Graduate School of Public Health.
Emily C. Somers
Emily C. Somers, Ph.D., Sc.M., is associate professor of internal medicine-rheumatology, of environmental health sciences, and of obstetrics and gynecology at the University of Michigan Schools of Medicine and Public Health. She specializes in autoimmune diseases, particularly lupus, and her work spans epidemiologic, clinical, and translational research, including the design and conduct of clinical trials. She has performed leading population-based studies of lupus epidemiology in the United Kingdom, Denmark, and United States. Major research interests include epidemiology, comorbidities, and public health impact of rheumatic and autoimmune diseases; clinical epidemiology of systemic lupus erythematosus (SLE), including studies of subclinical cardiovascular disease in SLE and gene expression-based molecular classification of lupus nephritis; and pharmacoepidemiologic issues in autoimmune disease. Her work in pharmacoepidemiology has characterized risk of drug-induced lupus, as well as developmental outcomes among offspring of mothers whose pregnancies occurred in the presence of SLE. She has received NIH funding, and currently receives CDC funding, for research investigating early life exposures to metals and development of immune dysfunction. She received her Sc.M. and Ph.D. in epidemiology from the London School of Hygiene and Tropical Medicine, and from the Johns Hopkins School of Hygiene and Public Health, respectively.
Barbara Vickrey
Barbara G. Vickrey, M.D., M.P.H., is professor and System Chair of Neurology at the Icahn School of Medicine at Mount Sinai. She specializes in translating clinical evidence into improvements in routine medical practice to improve patient health. Among her accomplishments are demonstrating that collaboration among health care systems, community organizations, and caregivers can improve quality of care and outcomes for dementia patients. She has designed health-care delivery innovations ranging from better control of post-stroke risk factors in underserved populations to new ways to care for veterans with Parkinson's disease. Dr. Vickrey is a member of the National Academy of Medicine. Dr. Vickrey served for 25 years on the faculty of the University of California, Los Angeles (UCLA), where she was professor of neurology and director of the departmental Health Services Research Program. She was also associate director for research at the Greater Los Angeles Veterans Administration Parkinson’s Disease Research, Education and Clinical Center. Dr. Vickrey earned her M.D. at Duke University School of Medicine and her M.P.H. at the UCLA School of Public Health. She completed postgraduate clinical training in medicine and neurology at the University of Washington in Seattle, and then research fellowships in the Robert Wood Johnson Clinical Scholars Program at UCLA and the RAND/UCLA Center for Health Policy Study.

Events


Event Type :  
-

Description :   

July 28 and 29, 2021 - Closed Deliberative Sessions

During this deliberative session committee members reviewed progress made in data gathering and report development. The committee discussed and deliberated on findings, make conclusions, and consider future steps for completing the report.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Leila Meymand
Contact Email:  LMeymand@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Bernard M. Rosof
Glinda S. Cooper
Deidra C. Crews
William R. Duncan
DeLisa Fairweather
Sonia Friedman
Lisa I. Iezzoni
Andrea M. Knight
Scott M. Lieberman
Michael D. Lockshin
Jill M. Norris
Emily C. Somers
Barbara G. Vickrey

The following topics were discussed in the closed sessions:

Committee members reviewed progress made in data gathering and report development. The committee discussed and deliberated on findings, make conclusions, and consider future steps for completing the report.

Date of posting of Closed Session Summary:
August 02, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

June 15 and 16, 2021 - Closed Deliberative Sessions

During these deliberative sessions, committee members reviewed progress of report development and the results of various information-gathering activities with the goal of identifying key findings to inform their recommendations. The committee also discussed and deliberated on conclusions to include in the final report and the next steps for completing the report.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Leila Meymand
Contact Email:  LMeymand@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Bernard M. Rosof
Glinda S. Cooper
Deidra C. Crews
William R. Duncan
DeLisa Fairweather
Sonia Friedman
Lisa I. Iezzoni
Andrea M. Knight
Scott M. Lieberman
Michael D. Lockshin
Jill M. Norris
Emily C. Somers
Barbara G. Vickrey

The following topics were discussed in the closed sessions:

Committee members reviewed progress of report development and the results of various information-gathering activities with the goal of identifying key findings to inform their recommendations. The committee also discussed and deliberated on conclusions to include in the final report and the next steps for completing the report.

Date of posting of Closed Session Summary:
June 16, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

April 21 and 22, 2021 - Closed Deliberative Sessions

During these deliberative sessions, committee members reviewed progress of report development and the results of various information-gathering activities with the goal of identifying key findings to inform their recommendations. The committee also discussed and deliberated on conclusions to include in the final report and the next steps for completing the report.

 


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Leila Meymand
Contact Email:  LMeymand@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Bernard M. Rosof
Glinda S. Cooper
Deidra C. Crews
William R. Duncan
DeLisa Fairweather
Sonia Friedman
Lisa I. Iezzoni
Andrea M. Knight
Scott M. Lieberman
Michael D. Lockshin
Jill M. Norris
Emily C. Somers
Barbara G. Vickrey

The following topics were discussed in the closed sessions:

Committee members reviewed progress of report development and the results of various information-gathering activities with the goal of identifying key findings to inform their recommendations. The committee also discussed and deliberated on conclusions to include in the final report and the next steps for completing the report.

Date of posting of Closed Session Summary:
April 23, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

March 3, 2021 – Deliberative Session.
During this deliberative session, the new committee members reviewed the National Academies bias and conflict of interest procedures; the committee also reviewed progress of report development, and the results of various information-gathering activities.  

March 4, 2021, 1:30 pm – 5:30 pm (ET). Public Session.
During this public session, experts from select NIH institutes and centers presented on NIH intramural and extramural research for autoimmune diseases.

March 5, 2021, 1:00 pm – 3:15 pm (ET). Public Session and Deliberative Session.
During this public session, representatives from different autoimmune diseases organizations and experts presented on the epidemiology of individual autoimmune diseases, research progress, and existing scientific and research gaps.

Following the public session, the committee deliberated the speaker presentations and implications for their work, and planned for the next committee meeting.

 



Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Leila Meymand
Contact Email:  LMeymand@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Some sessions are open and some sessions are closed

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Bernard M. Rosof
Glinda S. Cooper
Deidra C. Crews
William R. Duncan
DeLisa Fairweather
Sonia Friedman
Lisa I. Iezzoni
Andrea M. Knight
Scott M. Lieberman
Michael D. Lockshin
Jill M. Norris
Emily C. Somers
Barbara G. Vickrey

The following topics were discussed in the closed sessions:

During the closed sessions, new committee members reviewed the National Academies bias and conflict of interest procedures; the committee also reviewed progress of report development, and the results of various information-gathering activities. Additionally, the committee deliberated the speaker presentations and implications for their work, and planned for the next committee meeting.

Date of posting of Closed Session Summary:
March 08, 2021
Publication(s) resulting from the event:

-

Event Type :  
-

Description :   

February 1, 2021, 1:15 pm – 4:40 pm (ET). Public Session.

During this meeting, experts from select NIH institutes and centers and other program offices presented on their autoimmune diseases research processes.

February 2, 2021, 1:00 pm – 3:15 pm (ET). Public Session.

During this meeting, representatives from different autoimmune diseases organizations presented on the epidemiology of the disease, research progress, and existing scientific and research gaps.

February 5, 2021 – Closed Session.

The committee deliberated on open session presentations and results on other information-gathering activities and discussed the strategic approach to the study, data and information needs, and goals for the next meeting.



Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Leila Meymand
Contact Email:  LMeymand@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Some sessions are open and some sessions are closed

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Bernard M. Rosof
Jill M. Norris
Emily C. Somers
Michael D. Lockshin
Glinda S. Cooper
Deidra C. Crews
Sonia Friedman
Andrea M. Knight
Lisa I. Iezzoni
William R. Duncan

The following topics were discussed in the closed sessions:

The committee deliberated on open session presentations and results on other information-gathering activities and discussed the strategic approach to the study, data and information needs, and goals for the next meeting.

Date of posting of Closed Session Summary:
February 05, 2021
Publication(s) resulting from the event:

-

Event Type :  
Meeting

Description :   

January 12, 2021 – Closed Session.

The committee will discuss the strategic approach to the study, data and information needs, and goals for the next meeting.

 

Please note: the previously scheduled public sessions have been postponed to a later date.


Registration for Online Attendance :   
N/A

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Leila Meymand
Contact Email:  LMeymand@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Yes

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Bernard M. Rosof
Jill M. Norris
Emily C. Somers
Michael D. Lockshin
Glinda S. Cooper
Deidra C. Crews
Sonia Friedman
Andrea M. Knight
Lisa I. Iezzoni
William R. Duncan

The following topics were discussed in the closed sessions:

The committee discussed the strategic approach to the study, data and information needs, and goals for the next meeting.

Date of posting of Closed Session Summary:
January 14, 2021
Publication(s) resulting from the event:

-

Event Type :  
Meeting

Description :   

November 17. Closed meeting. During this meeting, the committee reviewed the National Academies bias and conflict of interest procedures, discussed their charge, developed questions for the study sponsor, and began discussing a strategy for answering the charge. 

November 18. Partially public/partially closed. During the public session (1:30 p.m. – 4:00 p.m. ET), representatives from the National Institute of Allergy and Infectious Diseases oriented the committee members to the charge and answered committee questions. Next, a representative from the National Institutes of Health reviewed the organization’s structure and funding. Expert speakers then provided overviews of the state of autoimmune diseases and autoimmune disease research in the U.S. During the closed sessions, the committee reviewed what had transpired and planned for the following meeting day.

November 19. Closed meeting. The committee discussed the strategic approach to the study, data and information needs, and goals for the next meeting.


Registration for Online Attendance :   
https://nasem-hmd-autoimmune-study-mtg-1.eventbrite.com

Registration for in Person Attendance :   
N/A


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Leila Meymand
Contact Email:  LMeymand@nas.edu
Contact Phone:  -

Supporting File(s)
-
Is it a Closed Session Event?
Some sessions are open and some sessions are closed

Closed Session Summary Posted After the Event

The following committee members were present at the closed sessions of the event:

Bernard M. Rosof
Jill M. Norris
Emily C. Somers
Michael D. Lockshin
Glinda S. Cooper
Deidra C. Crews
Sonia Friedman
Andrea M. Knight
Lisa I. Iezzoni
William R. Duncan

The following topics were discussed in the closed sessions:

The committee reviewed the National Academies bias and conflict of interest procedures, discussed their charge, developed questions for the study sponsor, and began discussing a strategy for answering the charge. 

The committee also discussed the strategic approach to the study, data and information needs, and goals for the next meeting.

Date of posting of Closed Session Summary:
November 20, 2020
Publication(s) resulting from the event:

-

Publications

  • Publications having no URL can be seen at the Public Access Records Office
Publications

No data present.