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The National Academies
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Washington, DC 20001
Tel: (202) 334-3543
Email: paro@nas.edu
Project Information

Project Information


Roundtable on Quality Care for People with Serious Illness


Project Scope:


The Institute of Medicine (IOM), a division of the National Academies of Sciences, Engineering, and Medicine, will establish a Roundtable on Quality of Care for People with Advanced Illness. Through meetings, public workshops, and background papers, the Roundtable will foster an ongoing dialogue about critical policy and research issues to accelerate and sustain progress in care for people of all ages with advanced illness. Inspired by previous work at the IOM, including the 2014 IOM report Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life, the roundtable will convene key stakeholders to focus on five priority areas:

  • Delivery of person-centered, family-oriented care, including mechanisms to reduce multiple transitions between care settings during advanced illness and in the final phase of life; recognition and support for the role of family caregivers; and efforts to ensure that critically ill individuals and their families understand the benefits of, and have access to, palliative care. 
  • Communication and advance care planning, including clinician-initiated conversations with individuals and loved ones about end-of-life care values, goals, and preferences; policies to support and incentivize such conversations; and methods to record individual preferences and ensure that they are honored.
  • Professional education and development, including attention to palliative care in medical and nursing school curricula; reducing educational siloes to improve the development of inter-professional teams; and providers’ communication skills.
  • Policies and payment systems, including policies to reduce payment siloes and incentives that will result in use of helpful services; scale-up of successful programs that integrate health care and long-term social services;  policies to incentivize the provision of comprehensive palliative care; and the development of quality standards and measures.
  • Public education and engagement, including strategies to promote informed understanding of advanced care and end-of-life care issues among diverse groups; efforts to motivate health care consumers to seek high-quality care for themselves and their loved ones; and efforts to normalize conversations about death and dying through storytelling and advocacy at multiple levels.
The Roundtable will be limited to a three-year term in order to focus its activities on tangible, short-term goals. Activities associated with the Roundtable will include expert meetings, public workshops and webinars, summary publications, and targeted communications and community engagement activities. Roundtable membership will include federal agencies, health insurers, advocates, patients, health care providers, foundations, academics, and others interested in the topic.

All activities of the Roundtable will be conducted in accordance with institutional guidelines described in “Roundtables: Policy and Procedures.”


Status: Current

PIN: IOM-HSP-15-13

RSO: Graig, Laurene

Topic(s):

Health and Medicine



Geographic Focus:

Committee Membership


Leonard D. Schaeffer - (Chair)
James A. Tulsky - (Vice Chair)
Pamela S. Hinds - (Member-at-Large)
Haiden A. Huskamp - (Member-at-Large)
Philip A. Pizzo - (Member-at-Large)
Kimberly Sherell Johnson - (Member-at-Large)
Kirk Allen - (Ex Officio Member)
Jennifer M. Ballentine - (Ex Officio Member)
Robert A. Bergamini - (Ex Officio Member)
Lori Bishop - (Ex Officio Member)
Patricia A. Bomba - (Ex Officio Member)
Karen Bullock - (Ex Officio Member)
Grace B. Campbell - (Ex Officio Member)
Jane Carmody - (Ex Officio Member)
Steve Clauser - (Ex Officio Member)
David Debono - (Ex Officio Member)
Andrew Dreyfus - (Ex Officio Member)
Mark B. Ganz - (Ex Officio Member)
Michelle Groman - (Ex Officio Member)
Denise Hess - (Ex Officio Member)
Rebecca A. Kirch - (Ex Officio Member)
Tom Koutsoumpas - (Ex Officio Member)
Shari M. Ling - (Ex Officio Member)
Diane E. Meier - (Ex Officio Member)
Amy Melnick - (Ex Officio Member)
Jeri L. Miller - (Ex Officio Member)
Jennifer Moore Ballentine - (Ex Officio Member)
R. S. Morrison - (Ex Officio Member)
Thomas M. Priselac - (Ex Officio Member)
Kitty Purington - (Ex Officio Member)
Rubina Raja - (Ex Officio Member)
Carole Redding Flamm - (Ex Officio Member)
JoAnne Reifsnyder - (Ex Officio Member)
Phillip Rodgers - (Ex Officio Member)
Judith A. Salerno - (Ex Officio Member)
Joseph W. Shega - (Ex Officio Member)
Susan E. Wang - (Ex Officio Member)
Dawn Wiatrek - (Ex Officio Member)
Baligh Yehia - (Ex Officio Member)

Events


Event Type :  
Webinar

Description :   

On June 5, 2020, the National Academies of Sciences, Engineering, and Medicine will host a webinar on Innovative Hospital-Based Palliative Care Responses to the COVID-19 Pandemic: Perspectives from Program Leaders of Two Large Hospitals.

Palliative care is team-based specialty care that provides an additional layer of support for people facing serious illness through communication and symptom management expertise. Prior to the COVID-19 pandemic, palliative care clinicians were in short supply, and in hard-hit metropolitan areas such as New York City and Boston, the need for palliative care expertise has greatly exceeded the available palliative care workforce.

In New York the Brookdale Department of Geriatrics and Palliative Medicine quickly designed and deployed a number of novel interventions to ensure access to palliative care for patients and families throughout the Mount Sinai Health System (New York City, Nassau, Westchester, and Rockland Counties). These included 1) a novel telephonic support line to extend the reach of palliative care during the covid-19 pandemic to clinicians and family members; 2) Embedded ED teams that partnered with existing clinicians; 3) Embedded clinicians within ICUs; 4) Transformation of an inpatient palliative care unit (PCU) to a COVID-PCU; 5) transformation of a community-based palliative care research project into a full-fledged clinical service adapted to the challenges of COVID-19 (lack of PPE, home healthcare, readily available medications); 6) Training non-palliative care clinicians to act as palliative care “extenders” 7) and targeted outreach to patients at high risk for severe COVID-19 to ensure goals of care were understood and e-MOLSTS completed where appropriate.

At Brigham and Women’s Hospital in Boston, the palliative care team created an online resource for clinicians (pallicovid.app), realigned its consult service to meet the needs of the ED and newly created COVID ICU, and rapidly transformed an Oncology Intensive Palliative Care Unit into a dedicated COVID-19 Palliative Care Unit where patients unlikely to survive could receive expert symptom management and psychosocial care.

The webinar will feature the key principles and lessons learned from these two specific innovative and rapid hospital-based responses to addressing palliative care needs during the pandemic.

Speakers:

Amy Berman, RN, LHD, FAAN , Senior Program Officer, The John A. Hartford Foundation

Elizabeth M. Rickerson, MD, Anesthesia and Pain Management, Palliative Medicine, Brigham and Women’s Hospital

Barbara Reville, DNP, ANP-BC, ACHPN, Nurse Director, Adult Palliative Care , Department of Psychosocial Oncology and Palliative Care , Fellowship Director, Palliative Care Nurse Practitioner Fellowship, Harvard Medical School Center for Palliative Care

Jane deLima Thomas, MD, Director, Inpatient Palliative Care, Dana-Farber Cancer Institute/Brigham and Women's Hospital Comprehensive Cancer Center, Associate Director, Harvard Interprofessional Palliative Care Fellowship, Instructor in Medicine, Harvard Medical School

Emily Chai, MD, Professor, Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai

R. Sean Morrison, MD, Ellen and Howard C. Katz Professor and Chair for the Brookdale Department of Geriatrics and Palliative Medicine at Mount Sinai Director, Lilian and Benjamin Hertzberg Palliative Care Institute , Director, National Palliative Care Research Center

This event is sponsored by the National Academies of Sciences, Engineering, and Medicine’s Roundtable on Quality Care for People with Serious Illness, Board on Population Health and Public Health Practice, and the Forum on Aging, Disability, and Independence.



Registration for in Person Attendance :   
NA


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Kaitlyn Friedman
Contact Email:  KFriedman@nas.edu
Contact Phone:  (202) 334-3153

Is it a Closed Session Event?
No

Publication(s) resulting from the event:

-

Event Type :  
Webinar

Description :   

Nursing home residents make up less than one-half of one percent of the U.S. population, but represent approximately 27 percent of COVID-19 related deaths to date according to one recent estimate. Safeguarding frail, vulnerable nursing home patients, who tend to have multiple chronic conditions--and the health care professionals who care for them—is a very difficult, but surmountable challenge amidst the COVID-19 pandemic.

 

On April 22, 2020 the National Academies of Sciences, Engineering, and Medicine hosted a webinar on keeping nursing home residents and staff safe in the era of COVID-19, highlighting the innovative approaches to address these complex challenges that are currently being implemented in the state of Maryland. The collaborative approach involves health care professionals at Johns Hopkins University School of Medicine, the state department of health, emergency medicine professionals, and newly formed “strike teams” made up of members of the National Guard. A recording of the first webinar can be viewed here: https://www.nationalacademies.org/event/04-22-2020/keeping-nursing-home-residents-and-staff-safe-in-the-era-of-covid-19-a-webinar.

 

Building on the first webinar, on June 2, 2020 the National Academies of Sciences, Engineering, and Medicine will host a webinar to:

• Explore the challenges to—and appreciate the urgency of—effective cohorting of nursing home residents during the COVID-19 outbreak to prevent virus transmission

• Discuss the design and implementation of an actionable cohorting strategy based on CDC Guidance

• Examine approaches to mitigate risk associated with new admissions, readmissions and residents who must routinely leave the nursing home or long-term care facility for medical appointments

 

Please join us for an informative discussion of pragmatic approaches to keeping nursing home residents and staff safe during the COVID-19 outbreak. The webinar will be recorded and archived at this webpage: https://www.nationalacademies.org/event/06-02-2020/keeping-nursing-home-residents-and-staff-safe-in-the-era-of-covid-19-effective-testing-and-cohorting-to-minimize-risk-of-transmission

 

Moderator:

JoAnne Reifsnyder, PhD, MBA, MSN, FAAN

Executive Vice President, Clinical Operations

Chief Nursing Officer

Genesis HealthCare

 

Speakers:

Caitlin Pedati, MD, MPH, FAAP

Iowa State Epidemiologist and Chair, Council of State and Territorial Epidemiologists Healthcare Associated Infection Subcommittee

 

Jeff Engel, MD

Senior Adviser for COVID-19

Council of State and Territorial Epidemiologists

 

Richard A. Feifer, MD, MPH, FACP

President, Genesis Physician Services

Chief Medical Officer, Genesis HealthCare

 

Arif Nazir, MD, FACP, CMD

Chief Medical Officer, Signature HealthCare

President, SHC Medical Partners

This event is sponsored by the National Academies of Sciences, Engineering, and Medicine’s Roundtable on Quality Care for People with Serious Illness, Board on Population Health and Public Health Practice, and the Forum on Aging, Disability, and Independence.



Registration for in Person Attendance :   
NA


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Kaitlyn Friedman
Contact Email:  KFriedman@nas.edu
Contact Phone:  (202) 334-3153

Is it a Closed Session Event?
No

Publication(s) resulting from the event:

-

Event Type :  
Webinar

Description :   

This event is sponsored by the National Academies of Sciences, Engineering, and Medicine’s Roundtable on Quality Care for People with Serious Illness, Board on Population Health and Public Health Practice, and the Forum on Aging, Disability, and Independence.

Nursing home residents make up less than one-half of one percent of the U.S. population, but represent approximately 15 percent of COVID-19 related deaths to date according to one recent estimate. Safeguarding frail, vulnerable nursing home patients, who tend to have multiple chronic conditions--and the health care professionals who care for them—is a very difficult but surmountable challenge amidst the COVID-19 pandemic. 

Nursing home residents who exhibit symptoms of the COVID-19 virus are often taken immediately to the hospital, which may lack the capacity to provide appropriate care for them. Often they are not allowed to return to the nursing home for fear of spreading the infection to other vulnerable residents and staff.

States and localities across the U.S. are seeking effective ways to provide high-quality care to as many nursing home patients as is possible without transporting them to the hospital, while ensuring nursing home staff have the appropriate personal protective equipment and are trained how to use—and in many cases reuse—this equipment, and how to implement infection prevention and control measures on site.

The National Academies of Sciences, Engineering, and Medicine will host a one-hour webinar to highlight the innovative approaches to address these complex challenges that are currently being implemented in the state of Maryland. The collaborative approach involves health care professionals at Johns Hopkins University School of Medicine, the state department of health, emergency medicine professionals, and newly formed “strike teams” made up of members of the National Guard.

Please join us for an interactive discussion of novel approaches to keeping nursing home patients and staff safe during the COVID-19 outbreak.

Moderator:

Terry Fulmer, PhD, RN, FAAN, President, The John A. Hartford Foundation

Speakers:

Michele F. Bellantoni, MD, CMD, Associate Professor & Clinical Director, Division of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, and Medical Director, Specialty Hospital Programs, Johns Hopkins Bayview Medical Center 

Alice Bonner, PhD, RN, FAAN, Director of Strategic Partnerships for CAPABLE and Adjunct Faculty, Johns Hopkins University School of Nursing

Timothy Chizmar, MD, FACEP, State EMS Medical Director, MIEMSS 

Morgan Katz, MD, MHS, Director of Antimicrobial Stewardship, Johns Hopkins Bayview , Assistant Professor Infectious Disease , Johns Hopkins University School of Medicine 



Registration for in Person Attendance :   
NA


If you would like to attend the sessions of this event that are open to the public or need more information please contact

Contact Name:  Kaitlyn Friedman
Contact Email:  KFriedman@nas.edu
Contact Phone:  (202) 334-3153

Agenda
-
Is it a Closed Session Event?
No

Publication(s) resulting from the event:

-

Publications