Documentary D.C. Premier, Panel Discussion on Rett Syndrome - July 9


An award-winning documentary that showcases the struggles of families living with Rett Syndrome, an autism spectrum disorder that strikes toddler girls, will hold its Washington, D.C. premier on July 9 at the National Academies’ Keck Center.  Members of the public are invited to attend the free screening of RETT: THERE IS HOPE and panel discussion with medical experts. 


The panel discussion following the screening will feature:

·         Harvey V. Fineberg, president of the Institute of Medicine

·         Huda Zoghbi, Institute of Medicine member and Rett Syndrome Research Trust (RSRT) adviser; Zoghbi identified the syndrome's genetic cause in 1999 after a 16-year search

·         Monica Coenraads, RSRT executive director and parent of a teenage daughter with Rett

·         Filmmaker Jason Rem



A reception will begin at 5:30 p.m., the screening will follow at 6:30 p.m., and a panel discussion will start around 7:30 p.m. on July 9 in Room 100 of the National Academies’ Keck Center, 500 Fifth St., N.W., Washington, D.C. 


The general public and reporters who wish to attend can receive more information or RSVP for the event by contacting National Academies' Office of News and Public Information; tel. 202-334-2138 or e-mail