Date: May 20, 1997 Contacts: Dan Quinn, Media Relations Associate April Sellers, Media Relations Assistant (202) 334-2138; Internet <email@example.com>
EMBARGOED: NOT FOR PUBLIC RELEASE BEFORE 5 P.M. EDT TUESDAY, MAY 20
New Emphasis, Better Coordination Needed to Elevate Field of Disability and Rehabilitation Research
WASHINGTON -- Federal efforts to improve the lives of people with disabilities are hampered by inadequate research funding and poor coordination among the many programs involved, says a new report from a committee of the Institute of Medicine. A new Agency on Disability and Rehabilitation Research should be created within the Department of Health and Human Services to set priorities, elevate awareness of rehabilitation science and engineering, and fund promising research, the report says.
One in six Americans has some type of disabling condition, and 10 million Americans are unable to attend school, work, or care for themselves. One-quarter of these cases involve impairments such as amputations or spinal cord injuries; the rest are from diseases or disorders such as emphysema or multiple sclerosis. Disabilities cost the nation more than $300 billion each year in medical costs and lost productivity.
"The federal government can improve the lives of millions and reduce overall medical costs by bolstering its commitment to rehabilitation science and engineering," said committee chair Edward Brandt Jr., director, Center for Health Policy, College of Public Health, University of Oklahoma. "To be effective, the government must foster a comprehensive research agenda that unites basic science, health, and engineering in a supportive research environment."
The new Agency on Disability and Rehabilitation Research would set the federal rehabilitation research agenda by coordinating work of the Department of Veterans Affairs, the National Science Foundation, and the National Institutes of Health. It would have the ability to fund interagency research and to enhance support where it identifies a need or an opportunity. Funding for the agency would come from shifting the National Institute on Disability and Rehabilitation Research -- currently in the Department of Education -- to the Department of Health and Human Services. This move would foster a more research-oriented environment, emphasize the importance of disability and rehabilitation as a health issue, and create a more effective mechanism for coordinating the work of researchers in disparate fields, the report says.
At $133 million each year -- or less than $7 annually for each person with a disability -- the current federal research expenditure pales when compared to costs involved. By providing new means of restoring function in people, research could substantially reduce health care costs and help stem the loss of wages and emotional distress that disabilities cause, the report says.
An Emerging Field of Study
Rehabilitation science and engineering seeks to restore physical capabilities in those who have disabilities or make changes that improve their interaction with the surrounding environment. The field melds knowledge from biology, engineering, and the physical, social, and behavioral sciences to better understand how disabling conditions develop, progress, or reverse. Researchers address topics as diverse as sorting out the biological roots of disease and designing more accessible buildings.
Three overarching goals should guide research in the field, the committee said. Researchers should:
> strengthen the science by working to develop ways of measuring and predicting functional limitations, disability, and health outcomes among people with potentially disabling conditions;
> focus on identifying the critical factors in the physical, social, and psychological environments that can promote or inhibit a person's ability to function. Because disability results from the interaction between human limitations and environmental influences, research must consider the entire range of factors, including whether adequate care is available, or whether a social support network is in place.
> develop links between research and practice to ensure that new technology is quickly used to improve the lives of people with disabilities. Although many government agencies have programs to help move ideas, products, and techniques from research to application, there is no well-organized mechanism for distributing research findings in rehabilitation science and engineering to those providing services.
Beyond the federal program, the committee called on the medical education and research community to formally recognize rehabilitation science and engineering as an emerging field of study. As such, it would stimulate ideas and help coordinate multidisciplinary research, while also providing a common knowledge base for individuals working on a rehabilitation team. Recognition of the field would connect the work of basic researchers more closely to the study of human disabilities and rehabilitation.
A committee roster follows. The study was sponsored by the U.S. Department of Health and Human Services. The Institute of Medicine is a private, non-profit organization that provides health policy advice under a congressional charter granted to the National Academy of Sciences.
Pre-publication copies of Enabling America: Assessing the Role of Rehabilitation Science and Engineeringare available from the National Academy Press at the mailing address in the letterhead; tel. (202) 334-3313 or 1-800-624-6242. The cost of the report is $45.00 (prepaid) plus shipping charges of $4.00 for the first copy and $.50 for each additional copy. Reporters may obtain copies from the Office of News and Public Information at the letterhead address (contacts listed above).
INSTITUTE OF MEDICINE Division of Health Sciences Policy
Committee on Assessing Rehabilitation Science and Engineering
Edward N. Brandt Jr. (1)(chair) Regents Professor and Director, Center for Health Policy College of Public Health University of Oklahoma Health Sciences Center Oklahoma City
Sharon N. Barnartt Professor and Chair, Department of Sociology Gallaudet University Washington, D.C.
Carolyn Baum Assistant Professor of Occupational Therapy and Neurology, and Director, Department of Occupational Therapy Washington University School of Medicine St. Louis
Faye Z. Belgrave Associate Professor of Psychology and Director of Applied Social Program, Department of Psychology George Washington University Washington, D.C.
Clifford Brubaker Professor and Dean School of Health and Rehabilitation Sciences University of Pittsburgh
Diana Cardenas Professor University of Washington School of Medicine, and Department of Rehabilitation Medicine University of Washington Medical Center Seattle
Dudley S. Childress (1) Professor of Biomedical Engineering and Orthopedic Surgery, and Director, Prosthetics Research Laboratory and Rehabilitation Engineering Research Program Northwestern University Chicago
Donald L. Custis Director, Medical Affairs (retired), and Executive Director for Health Policy Paralyzed Veterans of America Potomac, Md.
Sue K. Donaldson (1) Professor of Physiology School of Medicine, and Professor and Dean School of Nursing Johns Hopkins University Baltimore
David B. Gray Professor of Health Sciences Program in Occupational Therapy Washington University School of Medicine St. Louis
David Krebs Professor and Interim Director Graduate Program in Clinical Investigation Institute of Health Professions Massachusetts General Hospital Boston
Ellen J. MacKenzie Professor, Department of Health Policy and Management; Senior Associate Dean for Academic Affairs; and Director, Center for Injury Research and Policy Johns Hopkins University School of Hygiene and Public Health Baltimore
Margaret A. Turk Associate Professor, Department of Physical Medicine and Rehabilitation and Pediatrics State University of New York Health Sciences Center at Syracuse
Glen White Assistant Professor, Department of Human Development and Family Life University of Kansas Lawrence
Savio L-Y Woo (1,2) Ferguson Professor and Vice Chairman for Research Department of Orthopedic Surgery School of Medicine University of Pittsburgh
Edward Yelin Professor of Medicine and Health Policy University of California San Francisco
Wise Young Professor, Department of Neurosurgery New York University Medical Center New York City
INSTITUTE OF MEDICINE STAFF
Andrew M. Pope Study Director
(1) Member, Institute of Medicine (2) Member, National Academy of Engineering