Addressing Sickle Cell Disease – June 3 Meeting

On June 3, a National Academies of Sciences, Engineering, and Medicine committee will hold a meeting to discuss navigating, managing, and paying for sickle cell disease (SCD) care. Patients will also share their daily experiences living with SCD, as well as their perspectives on access to care and emerging therapies.

SCD is the most common inherited blood disorder in the United States. It afflicts nearly 100,000 people, primarily African Americans. The disease makes red blood cells rigid and difficult to pass through blood vessels, and the resulting blockage of blood flow can lead to debilitating pain, anemia, and stroke.  

The discussions at the meeting will inform a consensus study on the development of a strategic plan and action steps for addressing SCD in the United States.

Details:
Monday, June 3, 2019
1 p.m. – 5:45 p.m. EDT
National Academies’ Keck Center
500 Fifth St., N.W., Washington, D.C.
E Street Conference Room 
Agenda Webcast