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Meeting Information



Project Title: Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

PIN: IOM-BSP-13-05         

Major Unit:
Institute of Medicine

Sub Unit:
Board on the Health of Select Populations

RSO:
Mundaca, Carmen

Subject/Focus Area:
Health and Medicine


Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
May 5, 2014 - May 6, 2014
National Academy of Sciences Building
2101 Constitution Ave NW
Washington, DC 20418
Room 120


If you would like to attend the sessions of this meeting that are open
to the public or need more information please contact:


Contact Name: IOM MECFS Study
Email: mecfs@nas.edu
Phone: 202-334-3169
Fax: 202-334-2685


Agenda:

Institute of Medicine Study on Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

TENTATIVE OPEN SESSION AGENDA

May 5, 2014

1:00 – 1:15pm Introduction to Public Session
Ellen Wright Clayton, Committee Chair

1:15 – 2:45pm Patient and Advocate Panel: Challenges of ME/CFS patients when interacting with the health care system
- Joseph Landson
- Denise and Matthew Lopez-Majano
- Robert Miller
- Annette Whittemore

2:45 – 3:15pm Q and A from Committee

3:15 – 3:30pm Break

3:30 – 4:00pm Diagnostic Criteria Issues for ME/CFS
Leonard A. Jason, Professor, DePaul University, Director of the Center for Community Research

4:00 – 4:10pm Q and A from Committee

4:10 – 4:40pm Sleep Disturbances in ME/CFS
Akifumi Kishi, Postdoctoral Fellow in the Division of Pulmonary, Critical Care, and Sleep Medicine; Department of Medicine; NYU School of Medicine

4:40 – 4:50pm Q and A from Committee

4:50 – 5:20pm Neurocognitive Manifestations in ME/CFS
Gudrun Lange, Professor, Department of Physical Medicine and Rehabilitation, Rutgers University-New Jersey Medical School

5:20 – 5:30pm Q and A from Committee

5:30 pm Adjournment of Public Session
Ellen Wright Clayton, Committee Chair



Closed Session Summary Posted After the Meeting

The following committee members were present at the closed sessions of the meeting:
1. Ellen Wright Clayton (Chair)
2. Margarita Alegria
3. Lucinda Bateman
4. Lily Chu
5. Charles Cleeland
6. Ronald Davis
7. Betty Diamond
8. Betsy Keller
9. Nancy Klimas
10. A. Martin Lerner
11. Peter Rowe
12. Michael Shelanski


The following topics were discussed in the closed sessions:
1. Findings of the literature review
2. Presentations during the open session
3. Process for determining diagnostic criteria
4. Areas for additional research
5. Report outline


The following materials (written documents) were made available to the committee in the closed sessions:
1. Meeting agenda
2. Statement of Task
3. Relevant literature
4. Briefing materials
5. Public comments received via email through 04/23/14


Date of posting of Closed Session Summary: May 8, 2014