|
Project Title:
|
Confidentiality Issues Arising from the Integration of Remotely Sensed and Self-Identifyng Data
|
| PIN:
|
HDGC-I-03-01-A
|
Major Unit:
|
Division of Behavioral and Social Sciences and Education
|
Sub Unit:
|
|
RSO:
|
Stern, Paul
|
|
|
Subject/Focus Area:
|
|
|
Workshop on Confidentiality Issues
December 9, 2005 - December 10, 2005
National Academy of Sciences Building
2100 C St. NW
Washington D.C.
|
|
If you would like to attend the sessions of this meeting that are open
to the public or need more information please contact:
|
| Contact Name:
Linda DePugh
|
| Email:
ldepugh@nas.edu
|
| Phone:
202-334-1273
|
Fax:
202-334-3829
|
|
Agenda:
National Research Council
Workshop on Confidentiality Issues
in Linking Geographically Explicit and Self-Identifying Data
National Academy of Sciences
2101 Constitution Avenue, N.W., Washington D.C., Room 150
December 9-10, 2005
Agenda
December 9, 2005
9:00 am Opening comments
? Welcome (Myron Gutmann, panel chair; sponsors)
Reasons for the workshop (the issue of data linkage and the threats)
? Purview of the workshop (focus on linked data and on applications in
which federal or institutional rules of confidentiality or human subjects
protection apply)
? Threats of information disclosure and threats to data access (paper
and presentation)
Background paper by Gutmann et al., with presentation, on (a) threats to
confidentiality from new developments in remote sensing and GIS technology; (b)
threats from techniques of data mining; (c) possible consequences of loss of
confidentiality of survey data, both direct (identity theft, other crimes,
embarrassment, etc.) and indirect (reluctance to respond to surveys); and (d)
tradeoffs between protecting confidentiality and data access
9:45 am Legal, policy, and ethical context
(session chair: Myron Gutmann, University of Michigan)
? Privacy law as it relates to geospatially linked data ? Paper and
presentation:
Robert Gellman, Washington DC
Paper will summarize issues in privacy law that might apply to the issue of
linking data gathered in ways to which privacy law offers protections with
other data for which those observed do not have legal privacy protections. It
may raise and speculate on issues that will have to be faced in courts or
legislatures if technical developments create unprecedented situations.
? Ethical issues related to linked data ¬¬? Paper and presentation
Felice Levine, American Educational Research Association, and Joan Sieber,
California State University, East Bay
Paper will raise ethical issues related to linked data. An example
would be questions that could arise in the context of an IRB considering a
proposal to link these two types of data or to collect data with promises of
confidentiality that might later be linked to data that has no such guarantees,
where human subjects may be unaware of the potential consequences of linkage.
? Commentary: Harlan Onsrud, University of Maine
? Discussion
11:00 Break
11:15 am Confidentiality and Data Access Policies in Federal
Agencies, Universities, and Data Archives ? Roundtable discussion (session
chair: Felice Levine, American Educational Research Association)
Participants would describe the major issues regarding research approval and
data access and preservation and the policies and approaches used in
organizations known to them for meeting needs of confidentiality and data
access, particularly with linked spatial and social data. Participants would
be asked to provide relevant policy documents in advance, if they exist. The
purpose of this session is to understand issues and policies, leaving questions
of specific techniques to later.
Participants:
Federal Data Collection Agencies
--Steve Cohen, BLS (chair of Federal Committee on Confidentiality and Data
Access) (invited)
--Julie Kaneshiro, Working Group on Human Research Protection,
Department of Health and Human Services
University archives:
--Deborah Balk, Center for International Earth Science Information Network,
Columbia University
--Myron Gutmann, Inter-University Consortium on Political and Social
Research, University of Michigan
Government archives:
Jay Feuquay USGS EROS Data Center (invited)
IRB Systems:
Tora Bikson, Rand Corporation
12:30 Lunch
1:30 pm Open discussion: How well is privacy protected by existing
procedures and routines? At what cost to access and science?
(session chair: Ronald Rindfuss, University of North Carolina)
2:15 pm Break
2:30 pm Methods for Addressing the Threats
An overview of methods for reducing geospatial disclosure ? Presentation (and
paper)
Marc Armstrong, University of Iowa ? would map the territory to follow,
including methods of disclosure limitation and the range of techniques
involving transformations of spatial or other data in linked sets.
3:00 pm Disclosure limitation by restricted access - Panel discussion
Participants would discuss methods such as data enclaves and access limitation
by contract. They would explain approaches they have experience with, tell how
these approaches were applied, and discuss what kinds of researchers use the
data under these conditions (and, if possible, what kinds of researchers are
excluded).
Contract arrangements: Christopher Maxwell, Inter-University
Consortium for Political and Social Research, University of Michigan
Data Enclaves: Wayne Gray, Clark University
Ken Harris, Centers for Disease Control, Hyattsville, MD (invited)
NCHS users: Karen Guzzo, University of Pennsylvania
Mark Ellis, University of Washington
4:00 pm Disclosure limitation by open access to aggregated or
cell-suppressed data
Participants would discuss methods such as data aggregation and cell
suppression. They would explain approaches they have experience with, tell how
these approaches were applied, and discuss what kinds of researchers use the
data under these conditions (and, if possible, what kinds of researchers are
excluded).
Panelists: Laura Zayatz, Census Bureau
Larry Cox, National Center for Health Statistics, Hyattsville, MD (invited)
Open discussion
5:00 Adjourn
December 10, 2005
Open session
9:00 am Methods for Addressing the Threats (continued)
|
Closed Session Summary Posted After the Meeting
The following committee members were present at the closed sessions of the meeting:
Myron Gutmann
Marc Armstrong
Deborah Balk
Kathleen O'Neill Green
Felice Levine
Harlan Onsrud
Jerome Reiter
and Ronald Rindfuss
The following topics were discussed in the closed sessions:
Committee Composition and Balance.
The following materials (written documents) were made available to the committee in the closed sessions:
None.
Date of posting of Closed Session Summary:
March 21, 2006
|
|
|
