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Committee Membership Information




Project Title: Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

PIN: IOM-BSP-13-05        

Major Unit:
Institute of Medicine

Sub Unit: Board on the Health of Select Populations

RSO:

Mundaca, Carmen

Subject/Focus Area:  Health and Medicine


Committee Membership
Date Posted:   12/03/2013


Dr. Ellen W. Clayton - (Chair)
Vanderbilt University

Ellen Wright Clayton, M.D., J.D., is an internationally respected leader in the field of law and genetics who holds appointments in both the law and medical schools at Vanderbilt, where she also co-founded the Center for Biomedical Ethics and Society. She has published two books and more than 100 scholarly articles and chapters in medical journals, interdisciplinary journals and law journals on the intersection of law, medicine and public health. In addition, she has collaborated with faculty and students throughout Vanderbilt and in many institutions around the country and the world on interdisciplinary research projects, and helped to develop policy statements for numerous national and international organizations. An active participant in policy debates, she has advised the National Institutes of Health as well as other federal and international bodies on an array of topics ranging from children's health to the ethical conduct of research involving human subjects. Professor Clayton has worked on a number of projects for the Institute of Medicine (IOM), five of which she has chaired or co-chaired, and she is currently a member of the IOM Council. She is an elected Fellow of the American Academy for the Advancement of Science.

Dr. Margarita Alegria
Harvard Medical School

Margarita Alegría, Ph.D., is the director of the Center for Multicultural Mental Health Research (CMMHR) at Cambridge Health Alliance, and a full professor in the Department of Psychiatry at Harvard Medical School in Boston, Massachusetts. Dr. Alegría has an extensive publishing history with over 200 titles that include journal articles, book chapters, editorials, and research training manuals that focus on the areas of services research, conceptual and methodological issues with minority populations, risk behaviors, and disparities in service delivery. She is also on the editorial board of two journals, Archivos de Psiquiatría and Health Services Research. Dr. Alegría was the guest editor of the June 2012 supplemental issue of Health Services Research, and authored two of the articles in that issue. In addition to her partnerships and collaborations, research work, and publishing, Dr. Alegría has continued her commitment to mentoring and training. She has mentored over 50 pre- and post-doc faculty members, trainees, and junior investigators, whose interests are in disparities work and other emerging concerns in the mental health field such as immigration, acculturation, and the role of culture and context in both illness and treatment in mental health. She has received several Robert Wood Johnson Fellowship grants, which have greatly enabled her mentoring work to continue, and has been recognized for her mentoring leadership with the 2011 Excellence in Hispanic Mental Health Research Advocacy and Leadership award by the National Resource Center for Hispanic Mental Health, and the 2011 Excellence in Mentorship award by the National Hispanic Science Network. Dr. Alegría has been nationally honored with the 2003 Mental Health Section Award of the American Public Health Association, the 2006 Greenwood Award for Research Excellence, from the Research Centers in Minority Institutions (RCMI) Program Directors Association, and the American Psychological Association’s Presidential Recognition Award in 2008. Dr. Alegría received international recognition when she was appointed as a member of the Institute of Medicine in 2011.

Dr. Lucinda Bateman
Fatigue Consultation Clinic

Lucinda Bateman, M.S., M.D., is an internal medicine doctor at the Fatigue Consultation Clinic in Salt Lake City, Utah. She completed medical school at the Johns Hopkins School of Medicine, internal medicine residency at the University of Utah, and certification by the American Board of Internal Medicine. She practiced general internal medicine until 2000, when she changed her focus to the diagnosis and management of chronic fatigue, chronic fatigue syndrome (CFS) and fibromyalgia syndrome (FMS). Dr. Bateman‘s goal in establishing her Fatigue Consultation Clinic and the nonprofit OFFER (Organization for Fatigue and Fibromyalgia Education and Research) is to encourage a thoughtful evaluation process, better sharing of information, and more research efforts aimed at understanding the cause(s) and treatment of CFS and FMS. In addition to the co-founder, Executive Director, and board chair of the Utah-based nonprofit, OFFER, she has been on the boards of the Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Association of America and the International Association for Chronic Fatigue Syndrome/ Myalgic encephalomyelitis (IACFS/ME) and was the board chair of Easter Seals of Utah.

Dr. Lily Chu
International Association of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (IACFS/ME)

Lily Chu, M.D., M.S., is a board member of the International Association for CFS/ME and Stanford University's ME/CFS Initiative. She has a background in internal/ geriatric medicine and public health. She graduated from the University of Washington with a BS (molecular and cellular biology) and M.D., trained in internal medicine at the University of Rochester (New York) and geriatric medicine at the University of California, Los Angeles, and obtained an MS in health services research also while at UCLA. She has experience working in academic, small private, Veterans Administration, and large integrated multispecialty healthcare systems. She is interested in all aspects of ME/CFS ranging from pathophysiology, diagnosis, and treatment to epidemiology, healthcare provider education, and access to quality medical care. Dr. Chu also has personal experience with ME/CFS.

Dr. Charles S. Cleeland
M.D. Anderson Cancer Center The University of Texas

Charles S. Cleeland, Ph.D., is a McCullough Professor of Cancer Research and Chair, Department of Symptom Research at the M.D. Anderson Center. He is a leader in the area of cancer symptom epidemiology, assessment and treatment. He has directed epidemiological studies of pain and other symptoms in patients with cancer, studies of the mechanisms of pain and other symptoms, studies using PET and functional MRI to examine the effects of pain on cortical activity, and clinical trials aimed at reducing the risk of inadequate symptom control, including in underserved populations. Dr. Cleeland is a member and past president of the board of directors of the United States Cancer Pain Relief Committee. He is also past president of the American Pain Society. Dr. Cleeland's research is widely published. He has published numerous studies of the prevalence and severity of cancer symptoms, of U.S. and international symptom management practice patterns, and of potential biological mechanisms underlying the symptoms produced by cancer and its treatment.

Dr. Ronald W. Davis
Stanford University School of Medicine

Ronald W. Davis, Ph.D., is a professor of biochemistry and genetics at the Stanford school of medicine in Stanford, California. He is a world leader in the development of biotechnology, especially the development and application of recombinant DNA and genomic methodologies to biological systems. At Stanford University, where he is director of the Stanford Genome Technology Center, Davis focuses on the interface of nono-fabricated solid state devises and biological systems. Davis and his research team also develop novel technologies for the genetic, genomic, and molecular analysis of a wide range of model organisms as well as humans. The team’s focus on practical application of these technologies is setting the standard for clinical genomics.

Dr. Betty A. Diamond, M.D.
The Feinstein Institute for Medical Research North Shore-LIJ Health System

Betty Diamond, M.D., is chief of the Autoimmune Disease Center at North Shore-LIJ Health System. She graduated with a B.A. from Harvard University and an M.D. from Harvard Medical School. She performed a residency in internal medicine at Columbia Presbyterian Medical Center and received postdoctoral training in immunology at the Albert Einstein College of Medicine. Dr. Diamond has headed the rheumatology divisions at Albert Einstein School of Medicine and at Columbia University Medical Center. She also directed the Medical Scientist Training Program at Albert Einstein School of Medicine for many years. She is currently head of the Center for Autoimmune and Musculoskeletal Diseases at The Feinstein Institute for Medical Research and director of the Ph.D. and M.D./Ph.D. programs at the Hofstra North Shore-LIJ School of Medicine. A former president of the American Association of Immunology, Dr. Diamond has also served on the board of directors of the American College of Rheumatology and the Scientific Council of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). Dr. Diamond is a fellow of the American Association for the Advancement of Science (AAAS) and a member of the Institute of Medicine.

Dr. Theodore G. Ganiats, M.D.
University of California, San Diego

Theodore Ganiats, M.D., is the executive director of the UCSD Health Services Research Center. He is also Professor of Family and Preventive Medicine at the University of California San Diego (UCSD) School of Medicine. Dr. Ganiats attended the UCSD School of Medicine where he completed both his medical degree and his Family Medicine residency. He is a member of many professional associations, including the Society for Medical Decision Making, Academy Health, the American Public Health Association and the International Society for Quality of Life Research. Dr. Ganiats' research interests involve outcomes research, focusing on quality of life assessment and cost-effectiveness analysis. He has delivered over 100 lectures throughout the US and Europe. In addition, he was a member or chair of over 50 national guideline and quality/performance panels spanning multiple disciplines. He has been published in over 100 peer-reviewed journals, such as Diabetes Care, Medical Care, and the American Journal of Preventive Medicine. Dr. Ganiats is currently on the editorial boards of the Journal of Family Practice and Family Practice News and is a member of the Institute of Medicine.

Dr. Betsy Keller
Ithaca College

Betsy Keller, Ph.D., is a professor in the Department of Exercise & Sport Sciences at Ithaca College in New York. She received her Ph.D. in exercise science from the University of Massachusetts/Amherst. Her research has focused on physical inactivity and obesity in children, wellness in older adults, occupational physiology, and chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). For the past 10 years she has tested persons ill with CFS/ME for purposes of research and/or to provide an objective assessment of functional capacity and ability to perform and recover following physical work. Recently, she collaborated on an NIH R21 grant to study the effects of physical activity in CFS/ME on parameters of physiological and immune function. She has given many scientific, invited and lay presentations on physical inactivity and obesity, the effects of CFS/ME on physiological and physical function, and the role of physical activity in health, wellness, physical function and injury prevention. Dr. Keller is a Fellow of the American College of Sports Medicine, Past-President of the Mid-Atlantic Regional Chapter of American College of Sports Medicine, former member of the Board of Trustees of the American College of Sports Medicine and former Department Chair.

Dr. Nancy Klimas
Nova Southeastern University

Nancy Klimas, M.D., is the chair of Clinical Immunology at Nova Southeastern University. She is one of the world's leading researchers and clinicians in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) who recently joined Nova Southeastern University's College of Osteopathic Medicine faculty. An expert in immune disorders, Dr. Klimas retired from the University of Miami as Professor Emeritus to establish the NSU College of Osteopathic Medicine's Institute for Neuro-Immune Medicine, which is conducting cutting-edge research and treats patients suffering from CFS/ME and Gulf War Illness (GWI), as well as other immunologic disorders. Dr. Klimas is the director of research for the Clinical AIDS/HIV research program and Gulf War Illness research program at the Miami Veterans Affairs Medical Center. She is immediate past president of the International Association for Chronic Fatigue Syndrome/ME, an organization of researchers and clinicians dedicated to furthering our knowledge of this disabling illness. She continues to work nationally and internationally to bring a better understanding of ME/CFS to clinicians and policymakers.

Dr. A. Martin Lerner
Oakland University

A. Martin Lerner, M.D., MACP, is a professor of infectious diseases at Oakland University William Beaumont School of Medicine. He is certified by the American Board of Internal Medicine. He was awarded a 1-year fellowship in molecular biology under the direction of Dr. James Darnell at the Massachusetts Institute of Technology, Cambridge Massachusetts. Dr. Lerner was the Chief of the Division of Infectious Diseases and Professor of Internal Medicine at Wayne State University School of Medicine from 1963 to1982. He established a clinical virology laboratory and trained 33 physicians in the subspecialty of infectious diseases, at Wayne State University, from 1963 to 1982. Dr. Lerner was elected member of the American Society for Clinical Investigation, American Association of Physicians. He was also a member of the committee preparing the National Boards in Medical Examiners, US; a member of the training grant committee, National Institute of Allergy and Infectious Diseases, NIH; and the Governor for Michigan American College of Physicians, 1991-1994. Dr. Lerner is honorary Master of the American College of Physicians. The Dr. A. Martin Lerner CFS Foundation was formed to ensure that Dr. Lerner’s past 25 years of CFS-specific work was recognized, and communicated to CFS sufferers and physicians worldwide. The Foundation, established in early 2007, conducted a major study, which documented his successful treatment. The Foundation officially closed July 2011 after achieving its projected objectives. Dr. Lerner's work in CFS continues.

Dr. Cynthia D. Mulrow
American College of Physicians

Cynthia Mulrow, M.D., MSc, is senior deputy editor of annals of internal medicine and adjunct professor of medicine at the University of Texas Health Science Center at San Antonio. She has been program director of the Robert Wood Johnson Foundation Generalist Physician Faculty Scholars Program and director of the San Antonio Cochrane Collaboration Center and the San Antonio Evidence-based Practice Center. She was elected to the American Society of Clinical Investigation in 1997, served as a member of the U.S. Preventive Services Task Force 1998-2002, honored as a Master of the ACP in 2005, and elected to the Institute of Medicine in 2008. Cynthia’s academic work focused on systematic reviews, practice guidelines, research methodology and chronic medical conditions. She contributes to groups who set standards for reporting research: PRISMA (systematic reviews and meta-analyses), STROBE (observational studies) and CONSORT (clinical trials).

Dr. Benjamin Natelson
Beth Israel Medical Center, New York

Benjamin H. Natelson, M.D., received his bachelor’s and medical degrees at the University of Pennsylvania in Philadelphia and then did his neurology residency at the Albert Einstein College of Medicine in New York City. Next he did two postdoctoral fellowships: one in behavioral neurosciences at the Cornell University Medical Center in White Plains, NY, and one in physiologic psychology at the Walter Reed Army Institute of Research in Washington, DC. He then moved to the New Jersey Medical School in Newark and the Veterans Administration Medical Center in East Orange. He rose through the ranks, attaining the position of professor of neurosciences in 1981, leaving in 2008 as an emeritus professor. He had continual funding from the VA through 1999 for his experimental work on stress and chronobiology. With the award of a federally funded research center to explore the causes of chronic fatigue syndrome (CFS) in 1991, he shifted his research to studies of humans with CFS and more recently has extended those studies to include those with fibromyalgia. He served as president of the Pavlovian Society and of the Academy of Behavioral Medicine Research. He has more than 250 papers published in peer review journals and has authored 3 books. Since 2008, Dr. Natelson has moved his activities to the Department of Pain and Palliative Care at the Beth Israel Medical Center in Manhattan where he directs the Pain & Fatigue Study Center. In that capacity, he is also a professor of neurology at the Albert Einstein College of Medicine.

Dr. Peter Rowe
Johns Hopkins Medical Institutions

Peter Rowe, M.D., has directed the Chronic Fatigue Clinic at the Johns Hopkins Children’s Center since 1996 and is the inaugural recipient of the Sunshine Natural Wellbeing Foundation Chair in Chronic Fatigue and Related Disorders. He graduated from McMaster University Medical School, Hamilton, ON, Canada, in 1981. From 1981 to 1987, he was a resident, general academic pediatrics research fellow, and chief resident in pediatrics at Johns Hopkins Hospital. Between 1987 and 1991, he was a staff member at the Children’s Hospital of Eastern Ontario, Ottawa, and an assistant professor of epidemiology and community medicine, and of pediatrics. Dr. Rowe returned to Johns Hopkins University in 1991. His work focuses on conditions characterized by chronic fatigue, most importantly the relationship between chronic fatigue syndrome and treatable orthostatic intolerance syndromes, as well as the association between Ehlers-Danlos syndrome and CFS. His work has been funded by NIH, the Department of Defense, and the CFIDS Association of America, as well as by private donations.

Dr. Michael L. Shelanski
Columbia University

Michael Shelanski, M.D., Ph.D., serves as chairman of the department of pathology and cell biology at Columbia University, co-director of the Taub Institute, and director of the Medical Scientist Training Program. He is a member of the American Society for Cell Biology, the American Society for Investigative Pathology, the Association of American Physicians, and the Institute of Medicine of the National Academy of Sciences. Shelanski’s laboratory has been responsible for the identification and purification of several of the major cytoskeletal proteins and has served as a training ground for a number of outstanding scholars of the neurodegenerations. The laboratory is using a combination of cell biological and molecular biological approaches to unravel the pathways of “cell suicide” or apoptosis in Alzheimer’s disease and other neurodegenerations, to understand the alterations in gene expression that occur in these diseases, and to dissect the regulation of synaptic responses in them.